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“I know I’m not invincible”: an interpretative phenomenological analysis of thyroid cancer in young people

机译:“我知道我不是立于不败之地”:对年轻人甲状腺癌的解释性现象学分析

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摘要

Objective: Thyroid cancer is one of the most common cancers affecting young people and carries an excellent prognosis. Little is known about the psychosocial issues that face young people diagnosed with a treatable cancer. This study explored how young people experienced diagnosis, treatment, and how they made sense of an experience which challenged their views on what it means to have cancer. Method: Semi-structured interviews were conducted with eight young people diagnosed with either papillary or follicular thyroid cancer, and analysed with interpretative phenomenological analysis (IPA). Results: Two inter-related aspects of their experience are discussed: (1) The range of feelings and emotions experienced including feeling disregarded, vulnerability, shock and isolation. (2) How they made sense of, and ascribed meaning to their experience in light of the unique nature of their cancer. A thread running throughout the findings highlights that this was a disruptive biographical experience. Conclusions: Young people experienced a loss of youthful immunity which contrasted with a sense of growth and shift in life perspective. Having a highly treatable cancer was helpful in aiding them to reframe their situation positively but at the same time left them feeling dismissed over a lack of recognition that they had cancer. The young peoples’ experiences point to a need for increased understanding of this rare cancer, more effective communication from healthcare professionals and a greater understanding of the experiential impact of this disease on young people. Suggestions to improve the service provision to this patient group are provided.
机译:目的:甲状腺癌是影响年轻人的最常见癌症之一,预后良好。对于被诊断为可治疗癌症的年轻人所面临的社会心理问题知之甚少。这项研究探索了年轻人如何进行诊断,治疗,以及他们如何理解一种经历,这些经历对他们对患癌症意味着什么的观点提出了挑战。方法:对八名被诊断为乳头状或滤泡性甲状腺癌的年轻人进行半结构式访谈,并采用解释性现象学分析法(IPA)进行分析。结果:讨论了他们的经历的两个相互关联的方面:(1)所经历的感觉和情感的范围包括无视感觉,脆弱性,震惊和孤立感。 (2)根据癌症的独特性质,他们如何理解自己的经历并赋予其经验以意义。贯穿研究结果的线索强调这是一种破坏性的传记经历。结论:青年人失去了年轻的免疫力,这与成长感和生活观念的转变形成对比。患有可治愈的癌症有助于帮助他们积极地改变自己的处境,但与此同时,由于缺乏对他们患有癌症的认识,他们感到被解雇了。年轻人的经验表明,需要进一步了解这种罕见的癌症,需要医疗保健专业人员进行更有效的交流,并且需要进一步了解这种疾病对年轻人的影响。提供了改善该患者群体服务的建议。

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